Parkinson’s disease affects an estimated 1.5 million people in India, with thousands more silently supporting loved ones living with the condition. Awareness remains limited, and caregivers often face immense physical, emotional, and social challenges. Against this backdrop, the efforts of grassroots support groups are crucial in bridging gaps and providing guidance.
On the final day of International Purple Fest 2025, Parkinson’s disease was an important topic of discussion. Here, the work of Parkinson’s Mitra Mandal, a group of women who have lost their husbands to Parkinson’s and have dedicated themselves to helping patients and caregivers, was highlighted as part of the fest. The group provides a platform for sharing experiences, learning practical strategies, and offering emotional support.
Vijayalaxmi Revankar, a member of Parkinson’s Mitra Mandal, describes the initiative as a “self-help group” born from compassion and resilience. “Despite losing our husbands to this disease, we wanted to continue helping patients and caregivers. We believe in talking to patients and providing them with the support they need to lead a meaningful life,” Vijayalaxmi Revankar said.
The group’s efforts are driven by a deep understanding of the challenges faced by patients and caregivers, and their commitment to making a positive impact.
At a press conference Parkinson’s symptoms and effects were highlighted, including tremors, rigidity, restricted movement, depression, social withdrawal, and difficulty with daily activities. While the disease has no cure, medications and therapies can significantly improve quality of life.
“Despite the challenges Parkinson’s brings, it doesn’t define us,” Revankar said. “We are over 70, have lost our husbands, but never our hope. We live by the motto, ‘Enjoy with us,’ because sharing our journey proves that life can still be savoured.”
Parkinson’s Mitra Mandar also promotes holistic care, with its Vice-President highlighting yoga, dhyana, and pranayama as essential for oxygenating the brain and supporting mental and physical health. The group collaborates with doctors and organisations such as the American Parkinson’s Disease Association to provide reliable resources.
The group’s work extends beyond patient support, as they also strive to raise awareness about Parkinson’s disease and its impact on patients and caregivers. By sharing their experiences and knowledge, they aim to educate the public and promote understanding and empathy. As the group continues to grow and evolve, Mitra Mandar demonstrates the transformative power of shared experience in improving the lives of those affected by Parkinson’s disease.
It is through such dialogues and discussions at the International Purple Fest 2025, that lees spoken about topics like these are bright to the forefront, creating awareness and fostering understand and opening pathways for support and action.
